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Council On Developmental Disabilities
Our Mission: To initiate positive change on behalf of individuals with
developmental disabilities by voicing their needs to the community; creating
new choices for living, learning, and participation; and, ensuring the
highest quality of life possible.
Our Vision: A society that includes, values, and empowers children, youth,
and adults with developmental disabilities.
www.councilondd.org
Division
of Family Resource and
Youth
Services
Centers
(FRYSC)
The mission of these school-based Centers is to help academically at-risk
students succeed in school by helping to minimize or eliminate non-cognitive
barriers to learning. Each
center offers a unique blend of programs and services to serve the needs of
all children and their families as a means to enhance student academic
success.
There are 399
Family
Resource
Centers
, 233
Youth
Services
Centers
, and 150 combined Family Resource and
Youth
Services
Centers.
http://chfs.ky.gov/dfrcvs/frysc/
FRYSC
Regional Information
http://chfs.ky.gov/dfrcvs/frysc/Regions.htm
Dyslexia
Solutions Inc.
Dyslexia Solutions Inc is a
501c3 non profit corporation whose mission is to assess the nature and degree
of effectiveness of a new patented invention, The RAD Prism, in alleviating
the common symptoms of dyslexia in readers experiencing difficulties in
attaining reading proficiency and fluency. Dyslexia Solutions Inc.
works with people of all ages from around the world to evaluate and
distribute the RAD Prism.
www.readfluent.com
Family Voices
Family Voices is a national,
grassroots clearinghouse for information and education concerning the health
care of children with special health needs. Together, we share the expertise
and experiences of families from around the country with state and national
policymakers, the media, health professionals, and other families. There are
almost 40,000 Family Voices members - families of children with special
health needs and friends and professionals who know and love our children.
http://www.familyvoices.org/
F.I.N.D.
of
Louisville
(A Project of CMR)
FIND of Louisville (Family Information Network on Disabilities of
Louisville) FIND is federally funded by the U.S. Department of Education as
a Community Parent Resource Center (CPRC) to serve parents/families of
children with disabilities, birth to 26 years old. FIND provides free
training to parents/families, but also to professionals and agency staff,
related to educational issues, rights under IDEA and Section 504, and the
IEP process so that they can effectively advocate with the
Jefferson
County
Public school
system. In
addition, the training teaches parents/families about the importance of
working together with the school sytem to enhance the educational growth of
our children. The FIND trainings target parents/families living in
underserved areas as well as immigrant/refugee families of
Jefferson County
,
Kentucky
but all families
are welcomed.
http://www.findoflouisville.org/
First
Steps Program
First Steps,
Kentucky
's early intervention system,
serves children from birth to age 3 with developmental delays or specific
medical conditions known to cause developmental delays. First Steps
services are available statewide. Developmental
Intervention, vision and Audiological services, communication Development
and Assistive Technology. Anyone
can call the district Point
of Entry office to refer a child who may have a developmental delay or
affecting medical condition to the First Steps service systems.
http://chfs.ky.gov/dph/firststeps/
To
locate the nearest location, click: Point
of Entry
Human Development Institute (HDI)
HDI at the
University
of
Kentucky
and part of a nationwide network of University Centers for Excellence.
HDI and its sister agencies, the Kentucky Council on Developmental
Disabilities and the Kentucky Division of Protection and Advocacy form the
state’s Developmental Disability Network.
Since its inception, the Institute has worked to improve the lives of
individuals with disabilities. This unwavering attention to detail and
overall commitment is reflected in our mission and vision. It is through
guiding principles, our goals become clear and continue to keep us focused.
www.hdi.uky.edu
Kentucky
Assistive Technology Service Network
(KATS)
The KATS Network is the Kentucky Assistive Technology project operating
within its lead agency, the Department for the Blind, Workforce Development
Cabinet. It consists of a statewide network of organizations and individuals
connecting to enhance the availability of assistive technology devices and
services to improve the productivity and quality of life for individuals
with disabilities. Through advocacy activities and capacity building
efforts, the mission of this collaborative system is to make assistive
technology information, devices and services easily obtainable for people of
any age and/or disability.
http://www.katsnet.org/
Kentucky
Autism
Training
Center
(KATC)
The
Mission
of the
Kentucky
Autism
Training
Center
is to enhance supports for persons with autism by providing information and
technical assistance to families and service providers across
Kentucky
.
http://louisville.edu/education/kyautismtraining/about
Kentucky
Commission for Children with Special
Health Care Needs
The Commission for Children with
Special Health Care Needs (CCSHCN) provides specialty care to children with
a variety of physical disabilities. They
offer specialty clinics in 14 regional offices, doctor’s offices and
clinics across the state. Clinics are staffed by multi-disciplinary teams to
provide comprehensive, coordinated care.
Clinics offered include: Asthma (Severe), Burn, Cerebral Palsy, Cleft
Lip & Palate, Craniofacial, Cystic Fibrosis, Eye, Hand, Heart, Juvenile
Rheumatoid Arthritis, Orthopedic, Otology, Neurology, Neurosurgery,
Reconstructive Surgery, Scoliosis, Seizure, Spina Bifida. CCSHCN also
provides augmentative therapies and transition support for the young person
preparing for adulthood. Any
child under the age of 21 who is a resident of
Kentucky
may be eligible for services. The child
must have a condition treated by a Commission clinic program and his or her
family must meet financial guidelines based on income and family size.
Children with a Medical Assistance card are eligible for treatment.
Persons who have hemophilia are eligible for services regardless of
age. A parent or guardian,
physician or other caregiver can make referrals.
http://chfs.ky.gov/ccshcn/
The Kentucky Council on Developmental Disabilities (KCDD),
The Kentucky Council on Developmental Disabilities (KCDD), is authorized by
Executive Order of the Governor, in accordance with Public Law 106-402,
which is The Developmental Disabilities Assistance and Bill of Rights Act
(DDA) of October 30, 2000. The KCDD is comprised of twenty-six (26) members,
sixteen (16) of whom are appointed by the Governor. The mission of the KCDD
is to create change through leadership and advocacy so that people with
developmental disabilities have choices and control over their own lives.
The DD Act required the Council to develop a five year plan.
Currently the Council is in the first year of a new plan that will be in
effect until 2011. The KCDD enters into a collaborative effort with several
other organizations and agencies to address key areas of emphasis.
www.kcdd.ky.gov
Kentucky Deaf-Blind Project, University of Kentucky, Dept. of
Special Education
The Kentucky Deaf-Blind
Project provides technical assistance and training on behalf of persons
who have both vision and hearing challenges, in combination. Services
are offered to persons birth to 22 years of age, their families and
service providers. There is no fee for these services.
(new website under construction)
Diane.Haynes@KSB.kyschools.us
Kentucky
Department for Aging and Independent Living (DAIL)
Kentucky Department for Aging and Independent Living (DAIL) administers
programs and services, establishes policy and advocates on behalf of
Kentucky's elders and people with disabilities. DAIL works to support and
enhance freedom of choice and independence.
http://chfs.ky.gov/agencies/os/dail/
Kentucky
Department of Education/
Parent
Resource
Centers
(PRC)
Some
Kentucky
school districts provide information and
support to parents of exceptional children through locally funded and
staffed Parent Resource Centers. For more information about available
services, please contact your local PRC by clicking the link below:
http://education.ky.gov/KDE/Instructional+Resources/Exceptional+Children/Parent+Involvement/Parent+Resource+Centers.htm
Kentucky
Partnership for Families and Children, Inc.
(KPFC)
KPFC is a
private, nonprofit children's mental health advocacy organization.
KPFC's vision is to improve the quality of life for
children, youth, and young adults facing emotional, social, and behavioral
challenges and to encourage the healthy functioning of their families.
KPFC’s mission is to nurture hope for futures through: education
to individuals, their families, the professionals that serve them, and the
public in general; advocacy to improve outcomes and quality of life for
children, youth, and young adults; and reaching out to groups that do not
currently receive adequate services.
Kentucky
Partnership for Families & Children
Kentucky
Special Parent Involvement Network
(KY SPIN)
The mission of KY-SPIN, Inc. is to
empower and support individuals with disabilities and their families to
effectively advocate for and access needed information, resources and
support networks in order to enhance the quality of their lives. Since 1988
KY-SPIN, Inc. has been the Parent Training and Information (PTI) project for
Kentucky
, funded by the United States Department of Education, Office of Special
Education and Rehabilitation Services. SPIN
provides training, information and support to people with disabilities,
their parents and families, and information on all types of disabilities and
topics for all age groups. Through a "Families Training Families"
model, consultants conduct community workshops on the issues of laws,
rights, listening and communication skills, to promote better understanding
of disability issues.
www.kyspin.com
Kentucky Parents Teacher Association (PTA)
The PTA is the oldest and largest volunteer association working
exclusively on behalf of children and youth.
National PTA was formed in 1897 and Kentucky PTA was organized as an
affiliate in 1918. PTA is an advocate for all children and
youth in the areas of education, health and safety.
www.kypta.org
www.pta.org
Kentucky
PROTECTION AND ADVOCACY (P&A)
Kentucky Protection
and Advocacy, the Commonwealth’s federally-mandated protection and advocacy
system, was created to protect and promote the disability rights of
Kentuckians. The agency does this through legally-based advocacy that
includes information & referral, technical assistance, educational training,
and limited legal case representation. All services are provided at no cost
to consumers, regardless of citizenship status.
Through seven
federal grants, Protection and Advocacy is able to provide the above
mentioned services to individuals with all disabilities, regardless of age
or income level. Priorities for case representation are set each
fiscal year. These are based upon input from individuals with disabilities,
public comment, and guidance from the PADD (Protection and Advocacy for
Developmental Disabilities) Board and the PAIMI (Protection and Advocacy for
Individuals with Mental Illness) Advisory Council.
Protection and Advocacy has several publications that can be downloaded from
the website or are available at no charge by calling P&A. Workshop
presentations on different education related topics are also available.
www.kypa.net
Learning
Disabilities Association of
Kentucky
LDA provides services for the population with learning differences,
attention deficit disorder, dyslexia, etc. from early childhood through
adulthood. *All
individuals who learn differently will be supported on their journey to
becoming productive, independent and self-motivated contributors to society.
*A collaborative atmosphere will be promoted between parents,
educators and service providers.
Parent will be assisted through information sharing and support.
http:www.ldaofky.org/
Opportunities for Family
Leadership (OFL)
Opportunities for Family Leadership (OFL) is a family-led and family-driven
program of the Division of Mental Health and Substance Abuse, within the
Cabinet for Health and Family Services. The goal is to ensure that the
family voice is included in every stage of planning, implementation and
evaluation of services for the special populations MH/SA serves. OFL offers
a resource line for parents and caregivers. The resource line connects
families with the OFL program, which is a first step for accessing
education, resources and support.
http://mhmr.ky.gov/mhsas/OFL.asp
The ARC of
Kentucky
The Arc of Kentucky holds a Vision of a positive future for individuals with
intellectual and developmental disabilities, a future of communities with services and supports that
will promote lives of value for Kentuckians with
intellectual and developmental disabilities. The Arc
of Kentucky believes that individuals with
intellectual and developmental disabilities
are
contributing members of schools, work places, churches, synagogues,
neighborhoods, and their communities. The Arc values services and supports
that enhance the quality of life through interdependence, friendship,
choice, and respect for individuals with
intellectual and developmental disabilities.
www.arcofky.org
Melanie
Tyner-Wilson
859-278-4991
tynerwilso@aol.com
Anna
Winchell
Anna is a member of the State Advisory Panel for Exceptional Children and is
active in Kincare of Kentucky the state's organization for grandparents
like Anna finding themselves raising their special needs grandchild.
270-312-6020
270-982-3582
annajo@bbtel.com
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