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Council
on Mental Retardation/Parent Outreach
(CMR)
The Council on Mental Retardation, a private non-profit association of
families and friends of persons with mental retardation, has been advocating
for persons with mental retardation in
Jefferson
County
since 1952. Parent Outreach activities have been a core part of the
Council! About 25 years ago on a
more formal basis, the Parent Outreach program was established because
parents realized the tremendous benefits they gained through their
interactions with one another. Since
that time the Council has provided a staff person who works with the Parent
Outreach Committee to develop ways to facilitate ongoing friendships between
parents of infants, children, and adult children with mental retardation.
http://www.councilonmr.org/
Division
of Family Resources and
Youth
Services
Centers
(FRYSC)
The mission of these school-based Centers is to help academically at-risk
students succeed in school by helping to minimize or eliminate non-cognitive
barriers to learning. Each
center offers a unique blend of programs and services to serve the needs of
all children and their families as a means to enhance student academic
success.
There are 399
Family
Resource
Centers
, 233
Youth
Services
Centers
, and 150 combined Family Resource and
Youth
Services
Centers.
http://chfs.ky.gov/dhss/frysc/default.htm
To find the office
nearest you: http://chfs.ky.gov/dhss/frysc/Regions.htm
Dyslexia
Solutions Inc.
Dyslexia Solutions Inc is a
501c3 non profit corporation who mission is to assess the nature and degree
of effectiveness of a new patented invention, The RAD Prism, in alleviating
the common symptoms of dyslexia in readers experiencing difficulties in
attaining reading proficiency and fluency. Dyslexia Solutions Inc.
works with people of all ages from around the world to evaluate and
distribute the RAD Prism.
www.readfluent.com
Family Voices
Family Voices is a national,
grassroots clearinghouse for information and education concerning the health
care of children with special health needs. Together, we share the expertise
and experiences of families from around the country with state and national
policymakers, the media, health professionals, and other families. There are
almost 40,000 Family Voices members - families of children with special
health needs and friends and professionals who know and love our children.
http://www.familyvoices.org/
F.I.N.D.
of
Louisville
(A Project of CMR)
FIND of Louisville (Family Information Network on Disabilities of
Louisville) FIND is federally funded by the U.S. Department of Education as
a Community Parent Resource Center (CPRC) to serve parents/families of
children with disabilities, birth to 26 years old. FIND provides free
training to parents/families, but also to professionals and agency staff,
related to educational issues, rights under IDEA and Section 504, and the
IEP process so that they can effectively advocate with the
Jefferson
County
Public school
system. In
addition, the training teaches parents/families about the importance of
working together with the school sytem to enhance the educational growth of
our children. The FIND trainings target parents/families living in
underserved areas as well as immigrant/refugee families of
Jefferson County
,
Kentucky
but all families
are welcomed.
http://www.findoflouisville.org/
First
Steps Program
First Steps,
Kentucky
's early intervention system,
serves children from birth to age 3 with developmental delays or specific
medical conditions known to cause developmental delays. First Steps
services are available statewide. Developmental
Intervention, vision and Audiological services, communication Development
and Assistive Technology. Anyone
can call the district Point
of Entry office to refer a child who may have a developmental delay or
affecting medical condition to the First Steps service systems.
http://chfs.ky.gov/dph/firststeps/
To
locate the nearest location, click: Point
of Entry
Interdisciplinary
Human Development Institute (IHDI)
IHDI at the
University
of
Kentucky
and part of a nationwide network of University Centers for Excellence.
IHDI and its sister agencies, the Kentucky Council on Developmental
Disabilities and the Kentucky Division of Protection and Advocacy form the
state’s Developmental Disability Network.
Since its inception, the Institute has worked to improve the lives of
individuals with disabilities. This unwavering attention to detail and
overall commitment is reflected in our mission and vision. It is through
guiding principles, our goals become clear and continue to keep us focused.
http://www.ihdi.uky.edu/default.asp
Kentucky
Assistive Technology Service Network
(KATS)
The KATS Network is the Kentucky Assistive Technology project operating
within its lead agency, the Department for the Blind, Workforce Development
Cabinet. It consists of a statewide network of organizations and individuals
connecting to enhance the availability of assistive technology devices and
services to improve the productivity and quality of life for individuals
with disabilities. Through advocacy activities and capacity building
efforts, the mission of this collaborative system is to make assistive
technology information, devices and services easily obtainable for people of
any age and/or disability.
http://www.katsnet.org/
Kentucky
Autism
Training
Center
(KATC)
The
Mission
of the
Kentucky
Autism
Training
Center
is to enhance supports for persons with autism by providing information and
technical assistance to families and service providers across
Kentucky
.
http://louisville.edu/education/kyautismtraining/about
Kentucky
Commission for Children with Special
Health Care Needs
The Commission for Children with
Special Health Care Needs (CCSHCN) provides specialty care to children with
a variety of physical disabilities. They
offer specialty clinics in 14 regional offices, doctor’s offices and
clinics across the state. Clinics are staffed by multi-disciplinary teams to
provide comprehensive, coordinated care.
Clinics offered include: Asthma (Severe), Burn, Cerebral Palsy, Cleft
Lip & Palate, Craniofacial, Cystic Fibrosis, Eye, Hand, Heart, Juvenile
Rheumatoid Arthritis, Orthopedic, Otology, Neurology, Neurosurgery,
Reconstructive Surgery, Scoliosis, Seizure, Spina Bifida. CCSHCN also
provides augmentative therapies and transition support for the young person
preparing for adulthood. Any
child under the age of 21 who is a resident of
Kentucky
may be eligible for services. The child
must have a condition treated by a Commission clinic program and his or her
family must meet financial guidelines based on income and family size.
Children with a Medical Assistance card are eligible for treatment.
Persons who have hemophilia are eligible for services regardless of
age. A parent or guardian,
physician or other caregiver can make referrals.
http://chfs.ky.gov/ccshcn/
Kentucky
Department for Aging and Independent Living (DAIL)
Kentucky Department for Aging and Independent Living (DAIL) administers
programs and services, establishes policy and advocates on behalf of
Kentucky's elders and people with disabilities. DAIL works to support and
enhance freedom of choice and independence.
http://chfs.ky.gov/agencies/os/dail/
Kentucky
Department of Education/
Parent
Resource
Centers
(PRC)
Some
Kentucky
school districts provide information and
support to parents of exceptional children through locally funded and
staffed Parent Resource Centers. For more information about available
services, please contact your local PRC by clicking the link below:
http://education.ky.gov/kde/instructional+resources/exceptional+children/parent+information/parent+resource+centers.htm
Kentucky
Partnership for Families and
Children, Inc. (KPFC)
KPFC is a private, nonprofit children's mental health advocacy organization.
KPFC is dedicated to improving the services for children in
Kentucky
with emotional, behavioral, and/or mental health disabilities. KPFC provides
support, education, and advocacy to families that have children with
disabilities and to the professionals that serve them.
Kentucky
Partnership for Families & Children
Kentucky
Special Parents Involvement Network
(KY SPIN)
The mission of KY-SPIN, Inc. is to
empower and support individuals with disabilities and their families to
effectively advocate for and access needed information, resources and
support networks in order to enhance the quality of their lives. Since 1988
KY-SPIN, Inc. has been the Parent Training and Information (PTI) project for
Kentucky
, funded by the United States Department of Education, Office of Special
Education and Rehabilitation Services. SPIN
provides training, information and support to people with disabilities,
their parents and families, and information on all types of disabilities and
topics for all age groups. Through a "Families Training Families"
model, consultants conduct community workshops on the issues of laws,
rights, listening and communication skills, to promote better understanding
of disability issues.
http://www.kyspin.com/
Kentucky Parents Teacher Association (PTA)
The PTA is the oldest and largest volunteer association working
exclusively on behalf of children and youth.
National PTA was formed in 1897 and Kentucky PTA was organized as an
affiliate in 1918. PTA is an advocate for all children and
youth in the areas of education, health and safety.
www.kypta.org
www.pta.org
Learning
Disabilities Association of
Kentucky
LDA provides services for the population with learning differences,
attention deficit disorder, dyslexia, etc. from early childhood through
adulthood. *All
individuals who learn differently will be supported on their journey to
becoming productive, independent and self-motivated contributors to society.
*A collaborative atmosphere will be promoted between parents,
educators and service providers.
Parent will be assisted through information sharing and support.
http:www.ldaofky.org/
Opportunities
for Family Leadership (OFL)
Opportunities for Family Leadership (OFL) is a family led and family driven
program of the Department for Mental Health and Mental Retardation Services
within the Cabinet for Health and Family Services.
The goal is to ensure that the family voice is included in every
stage of planning, implementation and evaluation of services for the special
populations MHMR serves. OFL
offers a resource line for parents and caregivers.
The resource line connects families with the OFL program, which is a
first step for accessing education, resources and support.
http://mhmr.ky.gov/mhsas/OFL.asp?sub76%7Csub75
Recording
for the Blind and Dyslexic
Recording for
the Blind & Dyslexic serves all people with
"print disabilities" — those who can't effectively read standard
print because of a disability. Today, they serve 141,660
members worldwide, distributing 258,918
titles in 2005. Even more remarkable, more than 70 percent of the membership
— which includes students in kindergarten through graduate school, as well
as working professionals — are recognized with learning disabilities.
http://www.rfbd.org/
The ARC of
Kentucky
The Arc of Kentucky holds a Vision of a positive future for individuals with
mental retardation, a future of communities with services and supports that
will promote lives of value for Kentuckians with mental retardation. The Arc
of Kentucky believes that individuals with mental retardation are
contributing members of schools, work places, churches, synagogues,
neighborhoods, and their communities. The Arc values services and supports
that enhance the quality of life through interdependence, friendship,
choice, and respect for individuals with mental retardation.
www.arcofky.org
Weisskopf
Center
for
the Evaluation of Children
The
Weisskopf
Center
for the Evaluation of Children (WCEC) in the Department of Pediatrics at
the
University
of
Louisville
, is a unique center that provides diagnostic evaluations to infants and
children with, or at risk for, developmental disabilities, congenital
anomalies, genetic disorders, autism, organic behavior disorders (ADHD) and
learning disabilities, as well as genetic counseling to adults. The WCEC
serves as a demonstrative model for the provision of evaluation and
treatment services to children and their families with autism, other
developmental disabilities, and genetic disorders. Its staff actively
participates in the training of professionals involved in the care of these
individuals and is involved in clinical research in both areas of medicine.
It maintains national, state, and local prominence through its many unique
programs.
http://louisville.edu/medschool/pediatrics/wcec/
Melanie
Tyner-Wilson
859-278-4991
tynerwilson@aol.com
Anna
Winchell
Anna is a member of the State Advisory Panel for Exceptional Children and is
active in Kincare of Kentucky the state's organization for grandparents
like Anna finding themselves raising their special needs grandchild.
270-828-8537
annajo@bbtel.com
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