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Bobby Approved

 

Council On Developmental Disabilities
Our Mission: To initiate positive change on behalf of individuals with developmental disabilities by voicing their needs to the community; creating new choices for living, learning, and participation; and, ensuring the highest quality of life possible.
Our Vision: A society that includes, values, and empowers children, youth, and adults with developmental disabilities.

www.councilondd.org


Division of Family Resource and Youth Services Centers (FRYSC)
The mission of these school-based Centers is to help academically at-risk students succeed in school by helping to minimize or eliminate non-cognitive barriers to learning.  Each center offers a unique blend of programs and services to serve the needs of all children and their families as a means to enhance student academic success.  There are 399 Family Resource Centers , 233 Youth Services Centers , and 150 combined Family Resource and Youth Services Centers.

http://chfs.ky.gov/dfrcvs/frysc/

FRYSC Regional Information
http://chfs.ky.gov/dfrcvs/frysc/Regions.htm

Dyslexia Solutions Inc.

Dyslexia Solutions Inc is a 501c3 non profit corporation whose mission is to assess the nature and degree of effectiveness of a new patented invention, The RAD Prism, in alleviating the common symptoms of dyslexia in readers experiencing difficulties in attaining reading proficiency and fluency.  Dyslexia Solutions Inc. works with people of all ages from around the world to evaluate and distribute the RAD Prism.  

www.readfluent.com


Family Voices
Family Voices is a national, grassroots clearinghouse for information and education concerning the health care of children with special health needs. Together, we share the expertise and experiences of families from around the country with state and national policymakers, the media, health professionals, and other families. There are almost 40,000 Family Voices members - families of children with special health needs and friends and professionals who know and love our children.

http://www.familyvoices.org/


F.I.N.D. of Louisville (A Project of CMR)
FIND of Louisville (Family Information Network on Disabilities of Louisville) FIND is federally funded by the U.S. Department of Education as a Community Parent Resource Center (CPRC) to serve parents/families of children with disabilities, birth to 26 years old. FIND provides free training to parents/families, but also to professionals and agency staff, related to educational issues, rights under IDEA and Section 504, and the IEP process so that they can effectively advocate with the
Jefferson County Public school system. In addition, the training teaches parents/families about the importance of working together with the school sytem to enhance the educational growth of our children. The FIND trainings target parents/families living in underserved areas as well as immigrant/refugee families of Jefferson County , Kentucky but all families are welcomed.

http://www.findoflouisville.org/


First Steps Program
First Steps,
Kentucky 's early intervention system, serves children from birth to age 3 with developmental delays or specific medical conditions known to cause developmental delays. First Steps services are available statewide.  Developmental Intervention, vision and Audiological services, communication Development and Assistive Technology.  Anyone can call the district   Point of Entry office to refer a child who may have a developmental delay or affecting medical condition to the First Steps service systems.  

http://chfs.ky.gov/dph/firststeps/

To locate the nearest location, click: Point of Entry


Human Development Institute (HDI)  
HDI at the University of Kentucky and part of a nationwide network of University Centers for Excellence.  HDI and its sister agencies, the Kentucky Council on Developmental Disabilities and the Kentucky Division of Protection and Advocacy form the state’s Developmental Disability Network.  Since its inception, the Institute has worked to improve the lives of individuals with disabilities. This unwavering attention to detail and overall commitment is reflected in our mission and vision. It is through guiding principles, our goals become clear and continue to keep us focused.

www.hdi.uky.edu


Kentucky Assistive Technology Service Network (KATS)
The KATS Network is the Kentucky Assistive Technology project operating within its lead agency, the Department for the Blind, Workforce Development Cabinet. It consists of a statewide network of organizations and individuals connecting to enhance the availability of assistive technology devices and services to improve the productivity and quality of life for individuals with disabilities. Through advocacy activities and capacity building efforts, the mission of this collaborative system is to make assistive technology information, devices and services easily obtainable for people of any age and/or disability.

http://www.katsnet.org/


Kentucky Autism Training Center (KATC)
The Mission of the Kentucky Autism Training Center is to enhance supports for persons with autism by providing information and technical assistance to families and service providers across Kentucky .

http://louisville.edu/education/kyautismtraining/about


Kentucky Commission for Children with Special Health Care Needs
The Commission for Children with Special Health Care Needs (CCSHCN) provides specialty care to children with a variety of physical disabilities.  They offer specialty clinics in 14 regional offices, doctor’s offices and clinics across the state. Clinics are staffed by multi-disciplinary teams to provide comprehensive, coordinated care.  Clinics offered include: Asthma (Severe), Burn, Cerebral Palsy, Cleft Lip & Palate, Craniofacial, Cystic Fibrosis, Eye, Hand, Heart, Juvenile Rheumatoid Arthritis, Orthopedic, Otology, Neurology, Neurosurgery, Reconstructive Surgery, Scoliosis, Seizure, Spina Bifida. CCSHCN also provides augmentative therapies and transition support for the young person preparing for adulthood.  Any child under the age of 21 who is a resident of Kentucky may be eligible for services. The child must have a condition treated by a Commission clinic program and his or her family must meet financial guidelines based on income and family size.  Children with a Medical Assistance card are eligible for treatment.  Persons who have hemophilia are eligible for services regardless of age.  A parent or guardian, physician or other caregiver can make referrals.

http://chfs.ky.gov/ccshcn/


The Kentucky Council on Developmental Disabilities (KCDD),

The Kentucky Council on Developmental Disabilities (KCDD), is authorized by Executive Order of the Governor, in accordance with Public Law 106-402, which is The Developmental Disabilities Assistance and Bill of Rights Act (DDA) of October 30, 2000. The KCDD is comprised of twenty-six (26) members, sixteen (16) of whom are appointed by the Governor. The mission of the KCDD is to create change through leadership and advocacy so that people with developmental disabilities have choices and control over their own lives.  The DD Act required the Council to develop a five year plan. Currently the Council is in the first year of a new plan that will be in effect until 2011. The KCDD enters into a collaborative effort with several other organizations and agencies to address key areas of emphasis. 

www.kcdd.ky.gov


Kentucky Deaf-Blind Project, University of Kentucky, Dept. of Special Education
 
The Kentucky Deaf-Blind Project provides technical assistance and training on behalf of persons who have both vision and hearing challenges, in combination. Services are offered to persons birth to 22 years of age, their families and service providers. There is no fee for these services.

(new website under construction)
Diane.Haynes@KSB.kyschools.us


Kentucky Department for Aging and Independent Living (DAIL)
Kentucky Department for Aging and Independent Living (DAIL)
administers programs and services, establishes policy and advocates on behalf of Kentucky's elders and people with disabilities. DAIL works to support and enhance freedom of choice and independence.

http://chfs.ky.gov/agencies/os/dail/


Kentucky Department of Education/ Parent Resource Centers   (PRC)
Some Kentucky school districts provide information and support to parents of exceptional children through locally funded and staffed Parent Resource Centers.  For more information about available services, please contact your local PRC by clicking the link below:

http://education.ky.gov/KDE/Instructional+Resources/Exceptional+Children/Parent+Involvement/Parent+Resource+Centers.htm


Kentucky Partnership for Families and Children, Inc. (KPFC)
KPFC is a private, nonprofit children's mental health advocacy organization. KPFC's vision is to improve the quality of life for   children, youth, and young adults facing emotional, social, and behavioral challenges and to encourage the healthy functioning of their families. KPFC’s mission is to nurture hope for futures through: education
to individuals, their families, the professionals that serve them, and the public in general; advocacy to improve outcomes and quality of life for children, youth, and young adults; and reaching out to groups that do not currently receive adequate services.

Kentucky Partnership for Families & Children


Kentucky Special Parent Involvement Network (KY SPIN)
The mission of KY-SPIN, Inc. is to empower and support individuals with disabilities and their families to effectively advocate for and access needed information, resources and support networks in order to enhance the quality of their lives. Since 1988 KY-SPIN, Inc. has been the Parent Training and Information (PTI) project for Kentucky , funded by the United States Department of Education, Office of Special Education and Rehabilitation Services.  SPIN provides training, information and support to people with disabilities, their parents and families, and information on all types of disabilities and topics for all age groups. Through a "Families Training Families" model, consultants conduct community workshops on the issues of laws, rights, listening and communication skills, to promote better understanding of disability issues.

www.kyspin.com


Kentucky Parents Teacher Association (PTA)
The PTA is the oldest and largest volunteer association working exclusively on behalf of children and youth.  National PTA was formed in 1897 and Kentucky PTA was organized as an affiliate in 1918.  PTA is an advocate for all children and youth in the areas of education, health and safety.

www.kypta.org
www.pta.org


Kentucky PROTECTION AND ADVOCACY (P&A)

Kentucky Protection and Advocacy, the Commonwealth’s federally-mandated protection and advocacy system, was created to protect and promote the disability rights of Kentuckians. The agency does this through legally-based advocacy that includes information & referral, technical assistance, educational training, and limited legal case representation. All services are provided at no cost to consumers, regardless of citizenship status.

Through seven federal grants, Protection and Advocacy is able to provide the above mentioned services to individuals with all disabilities, regardless of age or income level.   Priorities for case representation are set each fiscal year. These are based upon input from individuals with disabilities, public comment, and guidance from the PADD (Protection and Advocacy for Developmental Disabilities) Board and the PAIMI (Protection and Advocacy for Individuals with Mental Illness) Advisory Council. 

Protection and Advocacy has several publications that can be downloaded from the website or are available at no charge by calling P&A.  Workshop presentations on different education related topics are also available. 

www.kypa.net


Learning Disabilities Association of Kentucky
LDA provides services for the population with learning differences, attention deficit disorder, dyslexia, etc. from early childhood through adulthood.     *All individuals who learn differently will be supported on their journey to becoming productive, independent and self-motivated contributors to society.     *A collaborative atmosphere will be promoted between parents, educators and service providers.     Parent will be assisted through information sharing and support.

http:www.ldaofky.org/


Opportunities for Family Leadership (OFL)
Opportunities for Family Leadership (OFL) is a family-led and family-driven program of the Division of Mental Health and Substance Abuse, within the Cabinet for Health and Family Services. The goal is to ensure that the family voice is included in every stage of planning, implementation and evaluation of services for the special populations MH/SA serves. OFL offers a resource line for parents and caregivers. The resource line connects families with the OFL program, which is a first step for accessing education, resources and support.

http://mhmr.ky.gov/mhsas/OFL.asp


The ARC of Kentucky
The Arc of Kentucky holds a Vision of a positive future for individuals with intellectual and developmental disabilities, a future of communities with services and supports that will promote lives of value for Kentuckians with
intellectual and developmental disabilities. The Arc of Kentucky believes that individuals with intellectual and developmental disabilities are contributing members of schools, work places, churches, synagogues, neighborhoods, and their communities. The Arc values services and supports that enhance the quality of life through interdependence, friendship, choice, and respect for individuals with intellectual and developmental disabilities.

www.arcofky.org


Melanie Tyner-Wilson

859-278-4991
tynerwilso@aol.com


Anna Winchell
Anna is a member of the State Advisory Panel for Exceptional Children and is active in Kincare of Kentucky the state's organization for grandparents like Anna finding themselves raising their special needs grandchild.  

270-312-6020
270-982-3582
annajo@bbtel.com


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